Sabrina Kelley, now 55, went straight from puberty to menopause while still in her teens, when she had a pituitary tumor removed. Despite eating healthily and being a varsity cheerleader, tennis player and runner, Kelley gained weight inexplicably. Then, in college, she went from a size 10 to a size 18 in less than a year.
“The doctors persisted in telling me about obesity, diabetes and hypertension among Black women and told me to exercise more and drink more water,” she says.
After four years of misdiagnosis, and after seeing five endocrinologists, two nutritionists and an internist, she was finally diagnosed with Cushing’s disease. A pituitary tumor caused her to produce excess hormones and gain weight.
Women have used #diagnosisfat and #fatphobia to call out medical providers who misdiagnose, ignore and stigmatize them because of their weight instead of treating them for blood clots, fibromyalgia, heart disease and more.
Between the discrimination, working and going to school, insecurity about her appearance, and symptoms of the disease, Kelley was hit hard by depression.
“I would come home from work and just lay in the middle of the floor and cry because I was really coming to the end of myself. I just felt like if something doesn’t give ... I was very suicidal,” she says.
“There are other [ways] you can tell this is secondary weight gain. But [the providers] missed them. They only saw a big Black woman who didn’t want to be healthy,” says Sylvia Gonsahn-Bollie, M.D., an award-winning physician and dual board-certified obesity specialist.
'The doctors persisted in telling me about obesity, diabetes and hypertension among Black women and told me to exercise more and drink more water,' she says. After four years of misdiagnosis, and after seeing five endocrinologists, two nutritionists and an internist, she was finally diagnosed with Cushing’s disease. A pituitary tumor caused her to produce excess hormones and gain weight.
While it may be true that CDC data shows that Black women have the highest rates of obesity in the United States, at four out of five, Dr. Gonsahn-Bollie wants to shift the conversation to solutions.
“All of these statistics just get massaged and repeated, so they almost become a pronouncement, without looking past them,” she says.
Keisha Ray, a 36-year-old assistant professor at the University of Texas Health Science Center at Houston, was twice misdiagnosed because of her weight. At 19, she was told by her doctor that losing weight would help regulate her periods. Five years later, extreme pain ruined her family vacation, and an emergency room visit uncovered a severe condition. It was unrelated to weight.
On a different occasion, although Ray prepared healthy meals and exercised regularly, she gained excessive weight in a few short weeks. Again, doctors told her to diet more, an inadequate solution to a problem that was never properly addressed.
“Eventually, I had a physician who gave me actual diagnostic tests and found biological abnormalities that explained my symptoms and required medication and surgery,” says Ray.
It’s bad enough that weighing in can elicit strong emotions like anxiety, guilt or shame, but health care providers, like anyone else, can be biased toward race and weight. Unfortunately, for the patient, the stigma can last a lifetime.
Dr. Gonsahn-Bollie urges her colleagues to revisit the way they assess obesity.